Scary Diagnosis
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A Book on Navigating Fear, Finding Strength, and Securing the Healthcare You Deserve
Give a resource of comfort and inspiration to family, friends, and patients facing a scary diagnosis.
About Book
A scary diagnosis can be overwhelming, launching patients and their loved ones into a world of fear, uncertainty, and complexity. Scary Diagnosis is a uniquely compassionate and empowering book that helps patients, families, and caregivers navigate the emotional and practical challenges that follow a serious medical diagnosis.
Author Edward Rogoff draws on his own experience with Hemophilia and shares compelling stories from others who have faced similar journeys. Through these narratives, he reveals how individuals can move from fear to strength, advocate for themselves, and navigate the healthcare system, while maintaining their sense of control and dignity.
About Ed Rogoff
Edward G. Rogoff, PH.D., is an accomplished educational leader who has taught at Baruch College, Long Island University, and New York University. Diagnosed with hemophilia as a child, he was cured by a liver transplant. Rogoff has served on the board of the Hemophilia Association of New York since 1980. Professor Rogoff remains a major advocate for further research, better treatments, and improved care for all patients who receive a Scary Diagnosis.
Resources
HTC
Hemophilia Treatment Center
Past Newsletters
Quarterly issues of our hemophilia association newsletter.
Financial Assistance
Educational Scholarship Program